Isabelle Bentley

Today was Izzie's 1st leap day! It was also her first trip to the aquarium.

We went to grandma & grandpa Bentleys's to celebrate his 60th birthday!

After going to get Jack's hair cut, we went to the Ecotarium.

Zzzzzz. So today was... frustrating. On Wednesday I got a phone call from her pediatrician that the brain scan we had done like 2 weeks ago came back with subtle results but that we'd have to talk to a neurosurgeon about what that meant. Today was that day. Scott took Izzie to the appointment. Basically, her brain bleed is still there and is not shrinking which is leading them to think it may be fluid . If it's fluid, it needs to be watched and MAY need to be drained using shunts . However the neurosurgeon wants her to have an MRI BEFORE her surgery which is exactly one week from today. We found this out around 4p today... a Friday. (WHen I google signs of having hydrocephalus (water in the brain) Izzie has NONE of them so I am hoping it's just a brain bleed that's taking its sweet time to resolve).  In order for babies to have MRIs they need to be under general anesthesia. Many questions we have but can't be answered until Monday. Some are: Should a 7lb 14

Look at that tummy! One of the moms whose daughter had heart surgery told us to take pictures of her abdomen before surgery since there will forever be a scar there after. She said she wished she had. EIT said she's doing great. She tends to tilt her head to the left but other than that, she's doing well. 

Snuggling on the couch after she got her blood drawn for her thyroid which is now measuring at 1.1 (needed to be above .08 and under 6.5).

What a cutiepie. Great eye contact. 

Tummy time!

We went to visit grandma & grandpa Bentley. Aunt Amanda and Mackenzie were there too!

I finally found my boba wrap - not that I could've used it on her before now - she was too floppy. But her head control is MUCH better. She loved it.  Jack, Scott, Izzie & I went to a Down's Syndrome playgroup and then out to lunch for a fundraiser for this organization called Heartbeats for Down's Syndrome . They bring a care basket and gift cards to the hospital while your child with DS is getting their heart surgery. 

Cuddling. This picture does not do it justice but this girl has more clothes than I do. These are her 3 month ones. I washed and folded them. She does not need ANNNNY more 3 month clothes. LOL. I do love all the zebra outfits coming up. She's still in newborn but kind of on the edge.

Watching her brother swim.

This past week she has begun sucking her thumb. Adorable.  Daddy time!

Peanut had a brain scan to check on that brain bleed. Haven't heard results yet. They also scanned her thyroid. It was fine.  Then she had an appointment with her endocrinologist.  Then playtime with her big brother. 

We went and visited Holly and her two kiddos today. 

Izzie's first Valentine is JACK! How cute.  The kids spent time with grandma & grandpa Bentley so we could go out to lunch! <3

We went to the Providence Children's museum today.  Here's Izzie through a cave hole!

We got a gift basket from a family with a child who has down's syndrome with $100 of awesome stuff in it! I will definitely be donating to it in the future to give to other families.  Izzie had 3 appointments today back to back to back. First, she saw a gastroenterologist (GI) doctor because I am fairly sure that she has reflux due to her hating being on her back after she eats and the noises she makes while eating. The gas she has is fine because it doesn't bother her. She just has it. With Jack, he used to be in pain and scrunch his little legs up. But she just has it. So that's fine. And she saw a nutritionist who is bumping her calories to 26 instead of 24 because of her slow weight gain. She's eating about 13 oz a day and getting roughly 340 calories. They want her gaining an oz a day and she's gaining less than half. UGH.  But the real kicker is... they retested her for hypothyroidism. And she has a mild case of it and are starting to give her meds fo

She had her follow up hearing appointment and pass with flying colors. She can even hear whispers.  Kids with down's syndrome are prone to hearing loss for a variety of reason (most of the time it's temporary) so they will keep monitoring just in case.  She had to not eat or sleep for 2 hours before he test so that she'd sleep through it and it took 90 minutes. 

Today she got her RSV shot. She weighed in at 7lbs, 8oz and 19 inches. Peanut.

That face.

Another snow day. I kept them home to play with them. It was wicked fun. UNTIL Izzie threw up formula out of her mouth and nose and STOPPED breathing around 6:30. I gave her some back blows and cleaned out her mouth while calling 911. She briefly turned blue. No idea why it happened but the EMTs came and checked her out. She was breathing fine. And her color was pink but it was really scary for a few minutes. 

Happy 3 months, Izzie! Izzie & Jack picked the losing team :(

Izzie and Jack had a play day with dad because I was at a cake tasting with Crystal. 

Big snow storm today so we had a snow day! I put out the tummy time mat for Izzie. Jack helped.

Love the little hoodie. She did well for EIT.

After Jack's swim class. 

I love zebra clothes. Well, zebra anything, really. I hope she still likes zebra stripes as she grows up. 

Peanut's first time in the baby bath (as opposed to the plastic bucket they send you home with from the NICU). She's just like her brother - loves baths.