Day 112
Zzzzzz.
So today was... frustrating. On Wednesday I got a phone call from her pediatrician that the brain scan we had done like 2 weeks ago came back with subtle results but that we'd have to talk to a neurosurgeon about what that meant. Today was that day. Scott took Izzie to the appointment. Basically, her brain bleed is still there and is not shrinking which is leading them to think it may be fluid. If it's fluid, it needs to be watched and MAY need to be drained using shunts. However the neurosurgeon wants her to have an MRI BEFORE her surgery which is exactly one week from today. We found this out around 4p today... a Friday. (WHen I google signs of having hydrocephalus (water in the brain) Izzie has NONE of them so I am hoping it's just a brain bleed that's taking its sweet time to resolve).
In order for babies to have MRIs they need to be under general anesthesia. Many questions we have but can't be answered until Monday. Some are:
So today was... frustrating. On Wednesday I got a phone call from her pediatrician that the brain scan we had done like 2 weeks ago came back with subtle results but that we'd have to talk to a neurosurgeon about what that meant. Today was that day. Scott took Izzie to the appointment. Basically, her brain bleed is still there and is not shrinking which is leading them to think it may be fluid. If it's fluid, it needs to be watched and MAY need to be drained using shunts. However the neurosurgeon wants her to have an MRI BEFORE her surgery which is exactly one week from today. We found this out around 4p today... a Friday. (WHen I google signs of having hydrocephalus (water in the brain) Izzie has NONE of them so I am hoping it's just a brain bleed that's taking its sweet time to resolve).
In order for babies to have MRIs they need to be under general anesthesia. Many questions we have but can't be answered until Monday. Some are:
- Should a 7lb 14oz 3 month old be going under anesthesia twice in 1 week? Also, she will be sedated for an echo on Thursday - and needs to stay over night because of that so it'd be anesthesia twice and sedation once.
- MRIs usually take weeks if not months to schedule... can we get this done before Friday???
- Does she actually NEED to have this done before Friday? If it's a brain bleed, I am assuming no because they already knew about that. If it's fluid - will having fluid in her brain even affect the surgery? If so, when do we do that surgery and how far out does the heart one get done?
I get that it's the weekend but we are ONE WEEK out from surgery and while nothing is set in stone - I just want this done.
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