Day 230

By Stevie -
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Day 122

By Stevie -
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Happy 4 months, peanut! It's reallllllly flown by.  The blanket on her below is a prayer shawl (that looks like a watermelon) made by someone from St. Patrick's Roman Catholic Parish and even though I'm not Catholic (although I do believe in prayer) I think it's a really cool thing that someone made. They made one for each of us which is awesome and very thoughtful.  Wire free since this am. The pacing wires that were in her body (wrists, I think) that gave instantaneous and continuous blood pressure were taken out today as was the nose cannula. The only thing left is the IV for when they need to give her meds (antibiotics and Tylenol at this point... plus she may be on some lasiks still) or take blood for labs.  Jack came to visit today too! She's slated to come home on Wednesday after having labs taken, a chest x-ray and another sedated MRI tomorrow. As long as they go well, she will be coming home Wednesday. 
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Day 97

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She had her follow up hearing appointment and pass with flying colors. She can even hear whispers.  Kids with down's syndrome are prone to hearing loss for a variety of reason (most of the time it's temporary) so they will keep monitoring just in case.  She had to not eat or sleep for 2 hours before he test so that she'd sleep through it and it took 90 minutes. 
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Day 32

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She had her cardiology follow up and he said she's doing as well as she can be with what she has - best case scenario. Her VSD is very small so it's not letting tons of extra blood flow to her lungs which would cause issues breathing and eating. Her 2 ASDs are doing fine. Her heart is still well balanced.  We visited my friend Jen and her 3 kids today!
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