Isabelle Bentley

Scott, Crystal, the kids and I spent this gorgeous day walking around the Boston Common and the Public Gardens. The kids also went on their first swan boat ride. 

Isabelle was supposed to not eat formula past midnight so I fed her at 11:30 last night. And then she could have pedialyte until 4:00a so I woke up and fed her at 3:30 and she went right back to sleep. And then I set my alarm for 6:00 so I could get ready for the day and snuggle her for a half hour. I got to sleep next to her (only 1 parent allowed). It was a chair that unfolded into a bed... and luckily I am able to sleep anywhere as long as I am somewhat reclined but I wouldn't wish that on anyone.  They also came in to give her a surgical scrub twice during the night.  They came to get her for her heart surgery at 7:15a and we got to go down with her and give her last minute hugs. We also got to meet her surgeon - Dr. Chris Baird.  Then we went to the waiting room and set up shop! Both of us did work because it's the easiest way to take our minds off of what was happening. Neither of us are very good with down time and just thinking about it would've eaten us a...

Izzie's pre-op day at Boston Children's Hospital.  Today has been very long. We had to be here at 7:30a to check in. They gave us wicked cool temporary badges as seen below. Then we got bloodwork done. They had a hard time finding her veins. Must be a Fuchs thing. They tried both arms and she screamed the entire time :( Her potassium levels came back a little high but nothing to worry about.  Then she has a chest x-ray but we weren't able to take pics of that.  After, they did an ekg (seen below) and then they measured her height (20.5 inches), weight (8lbs, 8oz), and head circumference (36cm). They checked her blood pressure which since she was screaming was high. Her pulse and oxygen were fine. Then we had our surgical consult where we found out the nitty gritty step-by-step details of her surgery tomorrow. I will detail those tomorrow.  Then we went on a tour of both the cardiac ICU and step down level cardiac ICU.  Then we had our anesthesi...

We went to the Boston Museum of Science. Jack loved every second of it. Izzie... slept mostly.  I could be wrong but this may have been her first trip into Boston.