Isabelle Bentley

Happy Saint Patrick's Day! Her EIT appointment went really well. She gave me lots of tips and tricks to help her start getting less low toned. She'll always have low tone - it's something you're born with but you can work on it. Like I've said before, it's not a bad thing. Gymnasts are low tone, marathon runners are high tone. Same shirt. Her visiting nurse also came and checked her out. She's doing awesome.

Jack & Izzie riding in the car together for the first time.  Izzie is the 2nd patient ever at the brand spanking new down syndrome clinic at UMass. It was their first day ever open. Wow. We found out she definitively does not have a clubbed foot. She just holds it weird. We need to stretch it out every day but d not need to cast it every week nor need braces. THANK GOD! And this is her at her 1st ever doctor appointment. She is back up to her birth weight. And her ear canals are big enough that the dr could see her eardrums. Lots of kids with down syndrome have hearing issues because their canals are too small. Her dr said she's very active - more active than most newborns. There is still a grade 2 bleed in her brain but it should go away soon. On a wicked annoying note - my csection wound half opened yesterday at the hospital because one of the stitches was stuck. So now every day for the next 6 weeks a visiting nurse has to come pack the w...