Isabelle Bentley

We got a gift basket from a family with a child who has down's syndrome with $100 of awesome stuff in it! I will definitely be donating to it in the future to give to other families.  Izzie had 3 appointments today back to back to back. First, she saw a gastroenterologist (GI) doctor because I am fairly sure that she has reflux due to her hating being on her back after she eats and the noises she makes while eating. The gas she has is fine because it doesn't bother her. She just has it. With Jack, he used to be in pain and scrunch his little legs up. But she just has it. So that's fine. And she saw a nutritionist who is bumping her calories to 26 instead of 24 because of her slow weight gain. She's eating about 13 oz a day and getting roughly 340 calories. They want her gaining an oz a day and she's gaining less than half. UGH.  But the real kicker is... they retested her for hypothyroidism. And she has a mild case of it and are starting to give her meds fo...

So I thought I had posted this somewhere on the blog but I guess I didn't. Kids with downs syndrome have a much higher chance of having hypothyroidism. Because of that, kids with DS are checked for it at birth, 6 months and 12 months. Izzie was asked to be part of a study where she got checked every 2 weeks for awhile and now every month. The purpose of the study is to see if it's better to check babies with DS more frequently to catch it sooner. All of her tests have come back normal... until today. Her tsh level is supposed to be under 6.5. Hers came back at 10. So she needs to be retested to see if it was just a fault test or if she has it. If she has it, it's just a matter of taking a pill every day for the rest of her life with no other changes but people with hypothyroidism tend to gain weight more so it's something to keep in mind and try to keep her as active as possible as she grows up. I have hypothyroidism, for example.