Isabelle Bentley

I am so proud of Isabelle. She's eatin stage 3 chunky food. And she eats all the food we give her off our plates. And puffs and this baby Jax stuff. Some kids with DS have sensory issues and need purees much longer. You may notice that she is in the ER above. Another trip due to her turning dark purple on her hands and feet for a few hours. They did a chest xray. They are clear. Her SATs were 96-100.  They also did an ekg and called her cardiologist. He basically said he's not worried. He said some kids with ds just do this and there is no explanation for it. She had a cyanotic episode.

She had two EITs today. One for feeding and one for her regular PT.  Both went well. The food one went GREAT. They said she is doing awesome. She is engaged in eating which some kids with DS aren't. Some are on feeding tubes for life :( Some never outgrow purees (really hoping that doesn't happen). But she ate oatmeal and sweet potatoes and then banana and watermelon through the mesh feeder which is a HUGE deal. She was in the highchair - with support (blankets, pool noodles etc...). She does great with a spoon. All around a very good visit.