Isabelle Bentley

We got a gift basket from a family with a child who has down's syndrome with $100 of awesome stuff in it! I will definitely be donating to it in the future to give to other families.  Izzie had 3 appointments today back to back to back. First, she saw a gastroenterologist (GI) doctor because I am fairly sure that she has reflux due to her hating being on her back after she eats and the noises she makes while eating. The gas she has is fine because it doesn't bother her. She just has it. With Jack, he used to be in pain and scrunch his little legs up. But she just has it. So that's fine. And she saw a nutritionist who is bumping her calories to 26 instead of 24 because of her slow weight gain. She's eating about 13 oz a day and getting roughly 340 calories. They want her gaining an oz a day and she's gaining less than half. UGH.  But the real kicker is... they retested her for hypothyroidism. And she has a mild case of it and are starting to give her meds fo...

Izzie has been sleeping through the night for about a week now. It's roughly either 8-4, 9-5 or 10-6ish. Awesome! So she had a nutrition appointment today. She's 6lbs 10 oz, head circumference is 34cm and length is 19in. She isn't on the charts. The problem is... she needs to gain weight and get bigger to do the surgery. It's really hard for the surgery to go well if the heart is super small. It's so frustrating because she eats great but just gains slow. So guess what they want me to do? Wake her up in the middle of the night to feed her. I don't mind but SHE JUST STARTED SLEEPING THROUGH THE NIGHT! LOL. Oh well. Worth it.  She also had a pediatrician appointment today too.