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Showing posts with the label massachusetts down syndrome congress

Day 245

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Scott is raising money for the Massachusetts Down Syndrome Congress (MDSC) where he will be able to skate with the Bruins alumni in November. Pretty cool. Click here to donate. He needs to get $2000 to play. We're at like $1640 (two offline donations). ANY amount would help - even like $5! Isabelle slept through her first fireworks!

Day 134

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The annual Massachusetts Down Syndrome Congress Conference was today.  Scott & I attended sessions on being a new parents of a child with DS, floor time activities and occupational therapy (ways to help her with things like brushing her teeth, getting dressed etc...). We met the keynote speaker - Tim Harris - who is the only person with down syndrome to own a restaurant in the country. He also was our friend, Kim's, homecoming king (she was queen).  So I chatted with him about her. Her onesie says "my extra chromosome makes me sparkle".

Day 23

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Dad and his babies. Izzie got this free onesie from the Massachusetts Down Syndrome Congress.