Buddy walk
The Lucky Few raised $7073! We were the #2 top fundraising team! And the largest team. David Muradian and Michael Moore were on our team. Amy McKinstry too!
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MDSC advocacy day article
Izzie was in the paper for going to advocacy day. http://linpub.blob.core.windows.net/pdf/2/4b4c1727-eeae-44cc-b550-05e4ef1e830a.pdf
MDSC Advocacy Day
Today Izzie and I attended our first ever Down syndrome Advocacy day at the state house. First, we were given a parking spot in the private parking lot which we were told had never been done by someone at this event before. Then we listened to a bunch of speakers including Mark Okerbloom from Fox 25 who emceed it. Then we took this picture. Then we had lunch. At 1:00p we met with State Senator Michael O. Moore and Representative David Muradian. We discussed 1. Higher education bill - support legislation to provide college access for individuals with intellectual disabilities. Go to college, take courses, participate in clubs and groups. 2. Ask governor Baker to support MDSC line item 5911-1 003 Earmark funding $175,000 for MDSC. 3. Support Department of Developmental Services (DDS) and UMass Down syndrome clinic line items - $150,000 for UMass DS clinic via Senate budget 4510-3010. After Mr. Muradian gave us a tour of the state house includ...
MDSC banner
Look who the mdsc made their banner of their facebook page in support of Scott raising money for the hockey game !
Buddy walk
The buddy walk was sooo much fun! We raised $5845 so we got a tent with our team name on it. The overall event raised over $87,000. We had 17 walkers on our team including Aunt Crystal & Uncle CJ. Crystal raised $1300!! Anyone who raised over $500 got an all-star sign. We were the #3 top fundraising team.
Walmart
Walmart is letting us fundraiser outside o August 27 from roughly 8a-4p. We'll be outside the pharmacy entrance. Looking for people to sign up in 2 hr shifts if possible. ALl the money raised will be donated to MDSC for team Isabelle.
UNOS
We are having a fundraiser at UNOS in Millbury on September 6 & 7. If you come in and bring this ticket/coupon or tell them you're there for this fundraiser, they will donate up to 20% of the bill to the MDSC buddy walk in honor of Team Isabelle.
MDSC newspaper
The write up on the mdsc hockey even was published today here on page 3: http://linpub.blob.core.windows.net/pdf/2/f913367e-268f-461e-8fa2-9e9bf7b73fff.pdf
Day 365
Isabelle's runner sent her some wicked cute clothes, tshirts from the buddy walk she did and two awesome medals from her runs. Isabelle has the best buddy ever! Dad, Isabelle and I went to baby sign language at the MDSC while grandma & grandpa Bentley watched Jack.
Day 329
Isabelle's famous! She was put in the MDSC email that went out to everyone in MA connected to Down Syndrome. A link to our story is here . Roughly 200 people checked out this blog today and tomorrow (I write these in the future). Grandma Fuchs went home :(
Day 317
We went to the buddy walk in Westboro. It was awesome - like 70 kids from Northbridge were there volunteering. We went to a friend's daughter's 5th birthday party. And we got to see grandma & grandpa Bentley!
Day 245
Scott is raising money for the Massachusetts Down Syndrome Congress (MDSC) where he will be able to skate with the Bruins alumni in November. Pretty cool. Click here to donate. He needs to get $2000 to play. We're at like $1640 (two offline donations). ANY amount would help - even like $5! Isabelle slept through her first fireworks!
Day 134
The annual Massachusetts Down Syndrome Congress Conference was today. Scott & I attended sessions on being a new parents of a child with DS, floor time activities and occupational therapy (ways to help her with things like brushing her teeth, getting dressed etc...). We met the keynote speaker - Tim Harris - who is the only person with down syndrome to own a restaurant in the country. He also was our friend, Kim's, homecoming king (she was queen). So I chatted with him about her. Her onesie says "my extra chromosome makes me sparkle".