Isabelle Bentley

Last day in the hospital. Her EKG came back perfect. Busting out of here! Home at least and on a gorgeous 70 degree day. What day wouldn't be complete without Jackson sticking stickers all over her??

Isabelle was supposed to not eat formula past midnight so I fed her at 11:30 last night. And then she could have pedialyte until 4:00a so I woke up and fed her at 3:30 and she went right back to sleep. And then I set my alarm for 6:00 so I could get ready for the day and snuggle her for a half hour. I got to sleep next to her (only 1 parent allowed). It was a chair that unfolded into a bed... and luckily I am able to sleep anywhere as long as I am somewhat reclined but I wouldn't wish that on anyone.  They also came in to give her a surgical scrub twice during the night.  They came to get her for her heart surgery at 7:15a and we got to go down with her and give her last minute hugs. We also got to meet her surgeon - Dr. Chris Baird.  Then we went to the waiting room and set up shop! Both of us did work because it's the easiest way to take our minds off of what was happening. Neither of us are very good with down time and just thinking about it would've eaten us a...

Boston Children's was able to fit Izzie in for a "feed & wrap" MRI today which means she needed to not eat and then when we go t there, feed her so she hopefully fell asleep and then we wrap her nice and tight so shes warm. It was not sedated. If today did not work out then she would've had to go back tomorrow for a sedated one and be admitted overnight.  Luckily, after 45 minutes of me rocking her after feeding, she went to sleep and they were able to do the MRI. She did wake p crying a few times but we were able to get her to go back to sleep but a 45 minute ultrasound turned into 2.5 hours. Poor kiddo. (Reminder, I had an MRI done this summer on her brain so I had to get into the machine... and I always knew I was a little claustrophobic but never knew I was THAT bad because I cried the entire time and had to be taken out several times. They are looking for this suspicious thing in her brain that could be 1 of 5 things: 1. the brain bleed she had when she...