Isabelle Bentley

Isabelle had a sedated echo today to check on her aortic valve leak which is new. It was done at Boston Children's hospital.  Unfortunately, she will need open heart surgery again in the next 3-6 months for the obstruction in her left ventricle. It is starting to cause her aortic valve to leak which can be tricky to fix. They need to look at the pictures and videos more closely and if they think it's more serious it will have to be sooner but I am shooting for July when I am home. There should be no complications from this. And there is a 99.9% success rate. The obstruction is called a subaortic stenosis.

Isabelle has an ekg and echo today and they determined there are a few things we need to keep an eye on. UGH. Here is the summary from the docto r: S he has a couple of small “patch margin” VSDs and one very small patch margin ASD.  There is very mild left ventricular outflow tract (LVOT) obstruction, likely the result of the mitral valve repair (we see this with some regularity and when mild it is no cause for concern).  There was mild mitral regurgitation (often seen after this type of repair).  The left ventricular function looked normal.  I just looked over the pre-discharge echo report (thanks for giving me access!  Dr. Breitbart’s office hasn’t faxed over a copy yet) and everything that I mention above was noted on the pre-discharge echo with the exception of the patch margin ASD (the VSD was noted but not the ASD), and the LVOT obstruction.  We were likely able to see these today and not in the pre-discharge study perhaps because she was so angry...