Isabelle Bentley

Jack & Izzie riding in the car together for the first time.  Izzie is the 2nd patient ever at the brand spanking new down syndrome clinic at UMass. It was their first day ever open. Wow. We found out she definitively does not have a clubbed foot. She just holds it weird. We need to stretch it out every day but d not need to cast it every week nor need braces. THANK GOD! And this is her at her 1st ever doctor appointment. She is back up to her birth weight. And her ear canals are big enough that the dr could see her eardrums. Lots of kids with down syndrome have hearing issues because their canals are too small. Her dr said she's very active - more active than most newborns. There is still a grade 2 bleed in her brain but it should go away soon. On a wicked annoying note - my csection wound half opened yesterday at the hospital because one of the stitches was stuck. So now every day for the next 6 weeks a visiting nurse has to come pack the w...

Izzie passed her car seat test today.  The developmental specialist took a look at her foot and said it's definitely not club foot. We're still gonna see the surgeon just in case on Friday.  Jack stopped by for a few. I miss him SOOO much. It was really hard to see him and say goodbye. But here are some pics of him and Izzie.  Izzie was discharged from the NICU today and is now in my room with me.  She does not have ventriculomegaly however she does have a grade 2 bleed in her brain which will clear up on its own and should cause no issues. There is no swelling which is also good. They'll keep an eye on it.  For visitors we had my mom, Jack, Jesse, Lindsay, Kyle, and Doug. 

Baby burrito. My mom came to visit.  Eyes open! Her prints. For visitor's we had grandpa Bentley, Jesse, Steve, Amber, Amanda, Sue & Don.  Medically, Izzie passed her hearing test in both ears. All the NICU docs think she does not have a clubbed foot but some orthopedic residents came by to see her and think she may have a mild case of it. So she needs to see the ortho surgeon to be sure. Finally, she had a brain scan this morning and preliminary results came back that she may have a mild case of ventriculomegaly which is why I had an MRI this summer. We will have more results as to what this might mean tomorrow but the docs were not worried.