Isabelle Bentley

Love this little outfit.  So... I'm going to be vulnerable for a minute. I think about Down Syndrome every single day, pretty much every time I look at her. And a lot of the time I can tell she has it. She has tell tale signs like upward slanted almond shaped eye and the folds behind her neck etc... But there are brief moments when I can't tell just by looking and even though I love her as is - it's kind of nice to have moments where I just see her as a baby - my daughter and not my daughter, who happens to have DS. I think this picture particularly makes her look "typical".  She weighed in at 10lbs. Different doctors' scales put her at different weights which is irritating because she was 10lbs 2oz last week. Her thyroid is doing well on the new dosage.

I finally am making enough milk to have a stash frozen in the fridge which is a HUGE deal because I didn't make nearly enough for Jack.  At her pediatrician appointment, she weighed 4lbs 6oz but that was with diaper on and poop in it. UGH. Her doctor gave us a preemie nipple for the bottle and she took MUCH more after having that. And she wasn't choking.  What a peanut.

Izzie had a cardiology appointment today. It went well- her heart is doing fine still. She's supposed to be gaining an ounce a day and she's lost weight so they are going to have me add formula to my breastmilk to make it higher calories.  CJ & Andie visited.  Grandpa was still here too.