Isabelle Bentley

Izzie's open house was tonight. She's in pre-k 3 again with the same teacher she had last year. She loooooved her. We did too. Also, one of my former student's kids is in her class. 

Izzie deliberately went into Jackson's room tonight and said "light off". She fell asleep after cuddling for a minute. Such a big girl. <3 Don't worry I woke her up, changed her and put her in her crib shortly after the pic was taken. 

Izzie has started to loosely use the potty. She will say "pee potty" and go to the bathroom. About 50% of the time she pees. She's never pooped. 

Izzie started to have a weird gait in July so we scheduled an appointment with her orthopedic doctor. He said she looks great for a 3 year old. She's running and walking fine. He even xrayed her hips. Says she no longer needs orthotics. The gait was likey due to a minor injury.

Scott got awarded a Hanover Hero for all the work he does for MDSC. It came with $1000 to MDSC as well as his picture posted all over the place. 

It only took me a year to post a pic of her room but here it is. 

Izzie was in the paper for going to advocacy day. http://linpub.blob.core.windows.net/pdf/2/4b4c1727-eeae-44cc-b550-05e4ef1e830a.pdf

Izzie's class made the news paper. http://linpub.blob.core.windows.net/pdf/2/4b4c1727-eeae-44cc-b550-05e4ef1e830a.pdf

Izzie peed on the potty twice today at daycare. 

We take the same pic every June 10. 

Last day of pre-k 3.

Today Izzie and I attended our first ever Down syndrome Advocacy day at the state house. First, we were given a parking spot in the private parking lot which we were told had never been done by someone at this event before.  Then we listened to a bunch of speakers including Mark Okerbloom from Fox 25 who emceed it. Then we took this picture.  Then we had lunch. At 1:00p we met with State Senator Michael O. Moore and Representative David Muradian. We discussed  1. Higher education bill - support legislation to provide college access for individuals with intellectual disabilities. Go to college, take courses, participate in clubs and groups. 2. Ask governor Baker to support MDSC line item 5911-1 003 Earmark funding $175,000 for MDSC. 3. Support Department of Developmental Services (DDS) and UMass Down syndrome clinic line items - $150,000 for UMass DS clinic via Senate budget 4510-3010. After Mr. Muradian gave us a tour of the state house includ...

Izzie's end of year celebration was today.

Isabelle had her first ever soccer game today!

Izzie's 1st soccer practice.

We did the Autism Project walk today for our neice Mackenzie! http://www.theautismproject.org/events/imagine-walk

I wish she would've smiled but here is Izzie's first ever school picture!

We went to see the Easter bunny today  - Jack requested reeses peanut butter cups and skittles. 

Isabelle had a repeat ultrasound on her kidneys and they found she is now at a stage 1 (improvement)  hydronephrosis  on the left kidney so they aren't worried about her. 

Isabelle took the bus home for the first time. She fell asleep on it so I couldn't get a pic of her getting off of it. 

Izzie is not a huge fan of snow.

At Legoland Izzie must have gone up and down this slide 500 times. 

Isabelle has her first nephrology appointment today. They told us that she has stage 2  hydronephrosis  which needs to be watched. She needs to have her kidneys ultrasounded again because they are watching one of them for possible issues with the tube. 

Isabelle is loving her school. 

The kids got to watch part of the Superbowl game.