World down syndrome day

By Stevie -
World down syndrome day!

Comments

Post a Comment

Popular posts from this blog

Day 122

By Stevie -
Image
Happy 4 months, peanut! It's reallllllly flown by.  The blanket on her below is a prayer shawl (that looks like a watermelon) made by someone from St. Patrick's Roman Catholic Parish and even though I'm not Catholic (although I do believe in prayer) I think it's a really cool thing that someone made. They made one for each of us which is awesome and very thoughtful.  Wire free since this am. The pacing wires that were in her body (wrists, I think) that gave instantaneous and continuous blood pressure were taken out today as was the nose cannula. The only thing left is the IV for when they need to give her meds (antibiotics and Tylenol at this point... plus she may be on some lasiks still) or take blood for labs.  Jack came to visit today too! She's slated to come home on Wednesday after having labs taken, a chest x-ray and another sedated MRI tomorrow. As long as they go well, she will be coming home Wednesday. 
Read more

Baths

By Stevie -
Image
Recently I started giving them baths together. SO MUCH EASIER and quicker.  However I don't really trust her to sit up so I got this sit up seat for her. Lifesaver. They got recalled because parents were leaving the kids in them and walking away and so the kids were tipping them over and drowning. I literally don't get that. I don't move an inch away from them when they are in the tub. She loves splashing around in it. By the way, the water has colors because we have tablets that turn it colors. One of Jack's favorite things to do is pick which color the bath water will be.
Read more

Day 32

By Stevie -
Image
She had her cardiology follow up and he said she's doing as well as she can be with what she has - best case scenario. Her VSD is very small so it's not letting tons of extra blood flow to her lungs which would cause issues breathing and eating. Her 2 ASDs are doing fine. Her heart is still well balanced.  We visited my friend Jen and her 3 kids today!
Read more